Mother Tracy Bush said she is angry with the way EpiPen is operating, raising the price of the life-saving medicine.
She says her son suffers from several food allergies that cause life-threatening reactions.
For the best protection and to safeguard her family, she keeps several EpiPens at home, in her purse and a pack for his school nurse.
“What I’ve done each year is I’ve put a pack together for the school nurse and every single item of his has a picture of him in case there’s a substitute,” Bush said.
Though she was able to stock up before the large price hike, she fears for the families who cannot currently afford them and if she’ll be able to when the current EpiPens expire.
Bush said she cooks the majority of her family’s food to prevent a flare. As an author and blogger (NutriMom), Bush offers healthy and safe meals for those that suffer from allergies.
In her allergy community, Bush said she has heard of mothers not being able to use the discounts coupon offered by EpiPen.
“I’ve had a couple page members email me and says that they went to fill it and there was a problem — their insurance wouldn’t accept it. I had another page member say that she went to get her prescription filled and because she couldn’t figure it out, they just overrode the coupon altogether,” Bush said.
CAN Heather Clark, with the Allergy and Asthma Center of NC, said their office has heard of similar complaints from patients.
Clark recommends patients contact the pediatrician or allergist who prescribes the EpiPen to speak directly with the pharmacy or insurance company that is denying the discount.
“I always tell people doctors and pharmacies are there for you, it’s not the opposite. So if you are not getting feedback that you feel is correct that’s going to protect your family, you need to find something that is going to help you in the correct way.”
Mylan does offer a patient assistance program for low-income households. If they qualify, they can receive a free EpiPen.