Baby with incredibly rare condition waits for new heart at Duke



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DURHAM, N.C. — A little Harnett County girl, not even a year old, is in the fight of her life at Duke Children’s Hospital.

Delaney Boone has been diagnosed with a condition that is so rare it only affects six in a million infants.

Delaney’s parents have been right by her side for the last seven weeks. Her mother Alicia is staying at the Ronald McDonald House as her dad Bruce commutes for work.

A trip to the doctor, then the ER, and eventually a life flight to Duke landed their little girl on a waiting list for a new heart.

Read more: WTVD

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