YADKINVILLE, N.C. -- The Shore family of Yadkinville is hosting two bone marrow drives in honor of their young son Jacob who suffers from a rare blood disorder.
Jacob Shore is under the age of two and has already undergone 28 blood transfusions.
He suffers from what's called Diamond-Blackfan anemia. The disorder stops the body from producing red blood cells and is essentially a failure of the bone marrow.
Ironically Jacob's mother April Shore, who is a nurse practitioner, treated one patient with the same anemia before learning of her son's diagnosis.
Dr. Thomas McLean with Wake Forest Baptist Medical Center said while steroids have been successful, the only true cure for the disorder is a bone marrow transplant.
"Most patients with Diamond-Blackman anemia, they're increased at the risk of getting other types of cancers and as they get older. Particularly into their 40s or 50s they tend to have more complications," McLean said. "It's important to generate awareness so if that donor doesn't match the patient he or she can be out into the pool and match another patient that might need a bone marrow transplant."
Shore said unfortunately none of the immediate family members match.
"We were hoping that someone in our family my husband or I or my daughter would be a match for him and it was very disappointing when we found out that we were not matches for him," Shore said.
In addition to constant visits at Brenner Children's Hospital, the family is also considering treatment at a hospital in Cincinnati if Jacob's current steroid treatment is unsuccessful.
Friday and Saturday the family is hosting two bone marrow transplants in honor of Jacob.
"We know that his drive will help someone because there's somebody's child out there that needs this," Shore said.
The two drives are scheduled for Friday from 9:30-11:30 a.m. at Novant Health Davie Medical Associates and Saturday in Yadkinville at Center United Methodist Church from 10 a.m.-2 p.m..
There are currently five other patients with Diamond-Blackfan anemia Wake Forest Baptist Medical Center is monitoring.