CARY, N.C. — Wake County baby Deklan Galvanek was only eight months old when he was diagnosed with the rare and potentially fatal Severe Combined Immunodeficiency known as “Bubble Boy” disease back in February after contracting H1N1.
He is now 17-months-old and his survival depends upon the national bone marrow registry following an unsuccessful bone marrow transplant from his mother Jenna earlier this year, according to WTVD. The outcome guarantees Deklan’s dad Evan will not be a match either.
His parents have turned their home into a sterile bubble, stringently regulating cleanliness and who comes and goes. The house is also outfitted with soaps, wipes and hand-sanitizer dispensers throughout and an air-purifying system. They are the ultimate safety measures to keep the toddler healthy and infection-free ever since he was first diagnosed with lacking an immune system earlier this year.
For more information, visit the family’s Facebook page.