Event held for young NC girl battling rare disorder
DALLAS, N.C. — A fun-filled family event in Dallas on Saturday raised money for a young girl battling a rare disorder.
WSOC-TV reported that 9-year-old Abby Ferguson suffers from Sanfilippo syndrome.
The rare, incurable disorder impacts brain development and has a life expectancy of 10 to 20 years.
Saturday’s Carnival for a Cure featured live music, games, raffles and a silent auction.
“I think when it affects a child people respond so differently. With there being no cure, no treatment and Abby is such a special child, every(one) just loves her and takes to her. They’ve just been so supportive,” said her parents, Wendy Ferguson and John Ferguson.
The money raised will go to help fund gene therapy clinical trials set to start in late 2014 or early 2015 at Nationwide Children’s Hospital in Ohio.