An inspiring North Carolina baby born with trisomy 13 “went home to heaven” on Saturday after a 134-day battle that defied odds and inspired thousands.
Corbin Alfred McHenry, of Havelock, North Carolina, was diagnosed in utero with a rare genetic condition called trisomy 13. Corbin and his parents inspired hundreds of thousands of people on Facebook during his 134 days battling the odds and proving doctors wrong.
Corbin’s fight ended on Saturday. His mother wrote:
“Corbin, today you were taken from my arms and went home to heaven at 7:04 am. It’s all still so surreal. Last night, between the laughter, memories, smiles, and tears I asked the nurse, “Are most families like this? Why are we not sad?” Her answer said it all: “You all are celebrating LIFE, you’re not mourning.” Oh how I loved to hear that.”
On Sunday, in place of his daily “birthday” photo, his mother posted a photo of “Super Corbin” – a photo of Corbin wearing a Superman-like cape with a “C” on the back.
Trisomy 13, also called Patau syndrome, is a chromosomal condition associated with severe intellectual disability and physical abnormalities in many parts of the body. Individuals with trisomy 13 often have heart defects, brain or spinal cord abnormalities.
Trisomy 13 is the presence of an extra 13th chromosome and affects nearly every organ in the body. Babies diagnosed with this conditioned are often deemed “incompatible with life.”
Many infants with trisomy 13 die within their first days or weeks of life. Only 5-10 percent of children with this condition live past their first year.
At 32 weeks, it was time for Corbin to be welcomed into his parents’ world. His parents were given a less than 1 percent chance their son would be born alive, but on April 4, Corbin stunned doctors and was born both breathing and crying.
Doctors told the family Corbin would likely only live a few hours, but the hours turned into days.
His parents created a bucket list for Corbin, which included going to the zoo, flying on a plane, going to the beach, attending a professional sports game and going to Disney World.
In the most recent post, Corbin’s mother wrote:
“I’d also like to thank each and every one of you. Your support, kind words, and prayers are extremely comforting in our time of need. God bless each and every one of you!”
A service will be held on Monday at 2100 E. Fifth St. in Greenville. The service is open to family and close friends.
Those wanting to make donations can contact:
Hope for Trisomy 13 & 18
P.O. Box 921
Springtown, TX 76082
SOFT (Support Organization for Trisomy)
2982 South Union Street
Rochester, NY 14624