An incredible 131-day-old baby born earlier this year with a rare genetic condition continues to prove doctors wrong and inspire thousands on Facebook.
Corbin Alfred McHenry, of Havelock, North Carolina, was diagnosed in utero with a rare genetic condition called trisomy 13.
Trisomy 13, also called Patau syndrome, is a chromosomal condition associated with severe intellectual disability and physical abnormalities in many parts of the body. Individuals with trisomy 13 often have heart defects, brain or spinal cord abnormalities.
Trisomy 13 is the presence of an extra 13th chromosome and affects nearly every organ in the body. Babies diagnosed with this conditioned are often deemed “incompatible with life.”
Many infants with trisomy 13 die within their first days or weeks of life. Only 5-10 percent of children with this condition live past their first year.
At 32 weeks, it was time for Corbin to be welcomed into his parents’ world. His parents were given a less than 1 percent chance their son would be born alive, but on April 4, Corbin stunned doctors and was born both breathing and crying.
Doctors told the family Corbin would likely only live a few hours, but the hours turned into days. Since then, days have turned to weeks and weeks have turned to months. Corbin is now 131 days old, has undergone multiple surgeries but is a happy baby.
His parents recently created a bucket list for Corbin, which includes going to the zoo, flying on a plane, going to the beach, attending a professional sports game and going to Disney World.
His mother writes:
“Corbin is currently 131 days old. We celebrate every day of life and any progress he makes. This way of life may not be ideal for some people and others may choose a different route, but this is the route we chose and this is Corbin’s fight. Corbin continues to progress daily and sometimes he has bad days but he’s a fighter and he stays strong.
He has won the hearts of his nurses who compliment his long brownish red hair, tiny toes, and chunky cheeks. He receives the prayers, positive energy and support from people all over the world. Most of all he is our world. Corbin has taught me more in these 100+ days than I could have figured out in a lifetime. He has taught me the definition of love, strong will, compassion, and life. He has brought real meaning to the phrase “it’s the little things in life”. And he has shown me the importance of life and what truly matters most… what matters is how many lives you can touch, how many people you can change, how many odds you can defy, and how much your life impacts the world. Corbin is a fighter, he is my miracle child, and he is my hero.”
Corbin’s parents also created a Facebook page called Prayers for Corbin. The page has over 296,000 likes. In the latest update, Corbin’s mother talks about his current state and an upcoming meeting with doctors.
If you would like to help, you can visit Prayers for Corbin for information about donations and upcoming fundraisers for Corbin.