Colo. child born without brain dies after 3 years of defying odds

Posted on: 1:23 pm, November 5, 2012, by

Nickolas Coke was born only with a brain stem. After defying the odds for 3 years, he died on Halloween. (Photo: Facebook)

PUEBLO, Colo. (KDVR) — A miracle child who defied medical odds is being remembered in Colorado after he passed away on Oct. 31.

Nickolas Coke was born without a brain, and survived until he was three years old, living a remarkable life that surpassed expectations.

KOAA first reported the news of his death, recalling Nickolas’ well-documented and rare condition called anencephaly, which means he was born with only a brain stem. Most infants with the condition die shortly after birth.

Nickolas woke up on the morning of his death with breathing troubles. He eventually stopped breathing. Doctors attempted CPR but were unable to revive him.

Instead of counting the days until the youngster’s death, his family tried to celebrate each one.

“He was our hero because he showed the strength. If I can do this, anything can be done,” his mother, Sheena Coke, told KOAA, “He taught us everything. He taught how to love, how to be family — he taught us everything.”

Last month Nickolas became an older brother to Jace Nickolas James, named in honor of his miraculous brother. Some of the final pictures of Nickolas show him goofing around at a pumpkin patch.

“He was laughing because he thought it was funny that we couldn’t get him to stay still enough to roll off the pumpkins,” his grandmother, Sherri Kohut, told KOAA.

The family would like to give special thanks to Sangre de Cristo Hospice, which has been by their side for Nickolas’ entire life.

This article was written and provided by Catrina Linhard with our news-gathering partners at KDVR in Denver, Colo.

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